August 19, 2019

I keep coming across "mom guilt" when talking to other moms. It is very REAL!

It doesn't matter if it is a pediatric stroke, a heart defect, cerebral palsy...a suicide.

For some reason, for many of us, we go to feelings of guilt when it comes to the suffering and challen...

March 25, 2019

Today I am CELEBRATING 👏 Cerebral Palsy Awareness Day - March 25, 2019!!!! ☘️

Eleven years ago, I sat in the office of a pediatric neurologist who had just examined my 18-month-old child, Brendon. I was there to “rule out” all neurological diagnoses. 🥺

It...

October 22, 2018

"In some cultures, children with special needs are seen as the human form closest to perfection and God, because they are no longer here on Earth to learn, but to teach.

In these cultures, the elders all bow down when the child with special needs enters the room."

...

October 1, 2018

When we get the diagnosis of pediatric stroke (or whatever life challenge it is for you) all we can see is the highest mountain and we believe we must be at the top, NOW.

When what we only focus on is being at the very top, we become overwhelmed, afraid and exhausted...

November 11, 2017

Henry Wadsworth Longfellow wrote the poem titled

A Psalm of Life.

In his poem, Longfellow, reminds us:

Act,— act in the living Present! 
Heart within, and God o’erhead!

It is my belief that children are a gift from something greater, handed off to us with love. ..

It is chi...

September 6, 2017

When we hear the diagnosis or diagnoses (or whatever devastating news that changes the life we know into something totally new) our mind begins to spin out of control.

It's as if a floodgate bursts, sweeping through our soul, drowning us with fear, guilt, anger, anxiety...

January 16, 2017

Every day, last week, on Social Media we talked about disability.

Here is the run down from our Facebook posts: 

Sunday, January 8th: This was the intro into our week long discussion about disability.  Check it out here.

Monday, January 9th: What is the meaning of disabil...

January 3, 2017

I absolutely love the meaning of the word synergy (noun: the interaction or cooperation of two or more organizations, substances, or other agents to produce a combined effect greater than the sum of their separate effects).

Let me back up a tad... I live with the philos...