World Pediatric
Stroke Association

4716 Langwood Court

Saint Louis, MO 63129

worldpsa@gmail.com

 

(314) 541-0603 

 

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© 2019 World Pediatric Stroke Association

Dedicated to Your Health Journey

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"One of the five apples in the bowl is green, and a green apple is more like red apples than different.  One in five Americans is a person with a disability, and people with disabilities are more like people without disabilities than different.  Like gender, ethnicity, and other traits, disability is a natural part of being human.  And it's time for the light of inclusion to shine on ALL!"

Resources

A resource is an action or strategy that may be adopted in adverse circumstances.

Listed are resources which I, Jessica Spear, have personally explored and feel confident in sharing as helpful in a journey with pediatric stroke.  

NOTE: It is impossible to list all resources available, an it is easy to get inundated.

Use these resources and others to become 

empowered, to curtail your plan of action for your specific needs. 

Click HERE for more information about a "New Ways of Thinking and Revolutionary Common Sense" in regards to disability. 

Facebook Support Groups: 

Asociación de Hemiparesia Infantil

La Asociación de Hemiparesia Infantil tiene por objeto atender las necesidades específicas de los niños y sus familias que conviven con la hemiparesia.

KISS (Kids & Infant Stroke Support)

Online support for parents started by moms of young children inpacted by pediatric stroke. support page after getting frustrated by the lack of resources in the pediatric stroke world, especially one single place to chat, learn and share knowledge about any and all developments or campaigns revolving around childhood stroke.

Pediatric Grief Support

The Pediatric Stroke Grief Support Facebook page is a "place" where parents, who have lost a child due to stroke or complications caused by stroke(s), HAVE A SAFE PLACE TO come together - to share, to vent, to express, to grieve...to support.

Project for Expansion of Education in Pediatric Stroke (PEEPS)

  • An Overview of Pediatric Stroke: Prenatal through Teenager: An Educational Guide for Healthcare Providers will soon be added to the Carolina Acute Stroke Training (CAST) program which currently has six education modules for stroke. Each module ends with a “Completion Certificate” which indicates learning hours for a wide range of learners.

  • The Pediatric Stroke Patient and Family Guide is intended to give families guidance on how to navigate this new journey after learning their child has suffered a stroke. Included in this booklet are terms you can use, types of specialists you may need to consult, and types of therapy that may be useful based on the age of the child. Parents have provided words of hope as well.

  • The Pediatric Stroke brochure is a condensed, trifold pamphlet that gives a quick overview of the risk factors of stroke for both perinatal and childhood. It lists what to look for and what to do if your child is experiencing any of the signs and symptoms of a stroke.